Today the National Organization for Rare Disorders announced this year’s Rare Impact Award honorees. The group will be honored for their exceptional work benefiting the rare disease community in a virtual event streaming on June 28. The Rare Impact Awards program is part of the Living Rare, Living Stronger NORD Patient and Family Forum, an annual conference that brings patients and families, advocates, health care professionals and other supporters together for learning, sharing and connecting.
Among the awards are Rare Impact Award, of which patient advocate Jade Day of Muskogee is a recipient.
“I am beyond humbled to receive this award. I never intended for my work with the rare diseases community to be recognized,” Day said. “I am just passionate about what I do for patients and families, including my own. It took dedication and years of hard work advocating, lobbying and pushing for change for those with rare disorders on tribal, state and federal levels.”